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A science of engagement in health research and innovation: Blurb

A science of engagement in health research and innovation
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Notes

table of contents
  1. Blurb
  2. Half Title Page
  3. Title Page
  4. Copyright Page
  5. Contents
  6. List of Abbreviations
  7. Acknowledgements
  8. Prologue: A Journey of Exploring New Relationships in Health Research
  9. Section 1
    1. Tracking the Foundations for a New Emancipatory Health Science
    2. A Personal Narrative of Social Innovations in Health: Research Examples of the Changing Roles of Patients
    3. Negotiating Co-research: A Theory and a Method for Empowering Stories
    4. A Social Contract for Patient Research: Negotiating New Patient Roles in Health Research
    5. An Emancipatory Health Science of Engagement: Science with a Moral Mandate
  10. Section 2
    1. Engaging: Best Practice of Peer Research
    2. Published Research About Engaging Patients in Health Research
    3. Salutogenesis as Patient Expertise in Health and Healthcare: Patients Reclaim Their Health in Healthcare
    4. Narrative as Data Science: Turning Stories into Real-Life Data
    5. Emancipatory Methods That Engage: A Resource for Qualitative Researchers
  11. Section 3
    1. Pivoting to Possibilities: New Emancipatory Theory and Methods for Peer Research and Innovation
    2. Patient Perspectives of Health Systems
    3. An Emancipatory Patient Standpoint Theory: Stories Tell Us Who We Are and Who We Want to Be
    4. Forces for Change
    5. Emancipatory Methods Inform Social Change and Innovation
  12. Epilogue: What Works and How

Chronicling Dr. Marlett’s distinguished career, this book is a richly described compilation of accessible resources for those interested in centring “patient” voices in health research and innovation. Through this book, readers—theorists, methodologists, practitioners, educators, students, and patients—find abundant points of entry through which to step into the conversation in a way that best fits their background and goals. Vivid historical accounts help readers locate their own experiences in relation to how discourses and corresponding practices have been advanced as well as challenged. Exemplar patient-driven initiatives are described and innovations to research design and data analysis are illustrated. A multitude of plain language tables and thought-provoking discussion questions add to the demystifying of research processes. This book has something for everyone seeking a world in which power and privilege can be more equally shared. 

—Dr. Bonnie Lashewicz and Dr. Meaghan Edwards,
Community Rehabilitation & Disability Studies,
Department of Community Health Sciences,
Cumming School of Medicine, University of Calgary

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© 2026 Nancy Marlett
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