List of Abbreviations

AAPS Association for Advancing Participatory Science

AbSPORU Alberta’s Strategies for Patient-Oriented Research Support Unit

AFI Adaptive Functioning Index

AHS Alberta Health Services

CAIL Calgary Association of Independent Living

CBPR community-based participatory research

CCD Canadian Coalition of the Disabled

CFHI Canadian Foundation of Health Improvement

CGT classical grounded theory

CQI continuous quality improvement

CS citizen science

EDI equity, diversity, and inclusion

GRR generalized resistance resources

HIMSS Healthcare Information and Management Systems Society

HQCA Health Quality Council of Alberta

IAP2 International Association of Public Participation

ICU intensive care units

IoT internet of things

JEDI justice through equity, diversity, and inclusion

KT knowledge translation

LOI letter of intent

MAF motivation to avoid failure

MAS motive to approach success

NAADAC National Association for Alcoholism and Drug Abuse Counselors

NIED National Initiative for Eating Disorders

OCAP ownership, control, access, and possession

OIS open innovation in science

PaCER Patient and Community Engagement Research

PAN Patient Advisors Network

Pan Pacific Aids Network

PAR participatory action research

PCN primary care network

PCORI Patient-Centered Outcomes Research Institute

PI principal investigator

POR patient-oriented research

PRA participant research associate

PREM patient-reported experience measures

PRR program resistance resources

PWLE people with lived experience

RRI responsible research and innovation

SCN Strategic Clinical Networks

SoC sense of coherence

SPOR Strategies for Patient-Oriented Research

TAIL Tell, Ask, Involve, and Lead

TQM total quality management

U3A University of the Third Age

XD experience design